Friday, August 12, 2016

The Body Has Been Battered But .......

Anna is released from hospital on a
wheelchair that walks down the stairs
We brought Anna home on 7th August, after 20 days in hospital with aspiration pneumonia and a critical respiratory distress incident. The first 10-12 days were touch-and-go. The last 8-10 days were spent trying everything we could to wean him off oxygen and IV fluids.

Both were difficult tasks given the fact that there were no tubes and no drastic medical interventions to keep him alive as per his instructions and wishes. No ventilator, no lung drainage tube, no feeding tube. The only "tube" was the IV.

His medical staff were great, looking at "other" means to get him back on track i.e. well enough to be sent home.

The key was to first get him to breath on his own and maintain his O2 level above 90% - something we managed with medication and physiotherapy.

Then there was the eating! Anna did not want to eat anything, could not eat anything.

I decided to do two things simultaneously - one was to cook foods that would dredge up fond memories of his childhood and the other was to grind everything into a baby-food-like consistency. So there was pureed upma, sooji-ka-halwa, vada sambar, idli sambar, curd rice - you get the idea.

Every time he woke up, we'd find a way to shovel a few teaspoons of favoured-foods-of-his-childhood into his mouth. We'd add his powdered medication to a couple of spoons to ensure that he was orally ingesting his medication.

In a desperate attempt to add some nutritional value to his food after I ran out of Nutralite Protien Powder, I tried Pediasure, a supplement for young growing children. Rich Kesar Badam. He loved it. We are now on our 3rd carton of that thing! And I am not moving to a more age-appropriate supplement till he is bored of this one.

We've had him home for 4 days. His disorientation and hallucinations have increased. And thru his bouts of "not being rooted in reality" we are trying to get him to eat. Eat anything at all. Focusing on calories with nutrition. At least 1200 power packed calories per day. Quinoa, eggs, paneer , vegetables, rajma, brown rice, oats, banana, mango, milk, curd, nuts, figs, dates, raisins.

On Thursday, as I drive him to meet his doctor for a review, I lecture him about eating more, re-starting regular physiotherapy sessions, and walking. 

Me (deciding to use a threat): "Anna, I will have no choice but to re-admit you into hospital and put you on IV fluids, if you don't eat properly. "

The father does not react to this threat at all!
Photo: http://www.manasla.com

Me (in jest): "Anna, will you drink beer? It has lots of calories. If you say yes, then I will ask the doctor." 

Anna (giving me sideways glance): "Beer has lots of calories. The doctor will say it has no nutrition. I need nutrition."  Pause. Then a little grin. "I am happy to have beer, if you think it helps!"

The logic and playful parts of his brain are working well, I see!


As we wait for the doctor, I continue to remind him to eat properly. This time I decide not to threaten him with a hospital stay, but use an incentive.

Me:  "Anna, if you eat properly, you will build up enough strength for me to be able to take you to Barista." Pause. "You remember coffee at Barista, right?"

Anna (with a small smile) : "Yes, Barista."

Me: "Anna, you can have coffee and a muffin. You like muffins, right?"

Anna (the grin widens, and in a teasing tone): "I know you want to go. I will join you just to give you company."

Appreciate the great sacrifice and hardship father!
Thanks for the favour. :-)


I am not taking Anna out for coffee and a muffin this weekend.
The long Independence Day weekend crowds and traffic are best avoided.
We've planned our coffee date for 16th August.
Hope he is well enough to go out then.

3 comments:

  1. I took care of my grandmother for 3 years. She had dementia. This March she passed away. I wish I could be more understanding and mature like you,while taking care of her. Its a great read and almost relatable.

    ReplyDelete
    Replies
    1. Thanks for the compliment. Whatever you did you did out of love and that is the best any of us can do.
      Happy to know that what I write resonates with people and they find it useful

      Delete
  2. I took care of my grandmother for 3 years. She had dementia. This March she passed away. I wish I could be more understanding and mature like you,while taking care of her. Its a great read and almost relatable.

    ReplyDelete